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Pediatric Health

Living With Hemophilia

There are currently around 20,000 males in the United States who are living with hemophilia. (Women, who are genetic carriers of the disease, very rarely experience any of the condition’s symptoms.) "Hemophilia comes in several shades of gray, and not everyone who has the condition will be affected in the same way,” says Bartholomew J. Tortella, MD, Medical Director on Pfizer’s Hemophilia team. 

That said, most boys and men with hemophilia, and those caring for them, will face similar challenges and concerns as they transition from one stage of life to another. Read on to learn how people with hemophilia and their parents and/or caregivers can make that path through life a bit smoother.

[1] [2] [3] [4] [5]

References

  • 1. Centers for Disease Control and Prevention. Data & statistics. Accessed January 29, 2014.
  • 2. National Heart, Lung, and Blood Institute. What is hemophilia? Accessed August 1, 2013.
  • 3. World Federation of Hemophilia. Guidelines for the management of hemophilia. Accessed May 15, 2013.
  • 4. Petrini P and Seuser A. Haemophilia care in adolescents – compliance and lifestyle issues. Haemophilia. 2009; 15(suppl. 1): 15–19. doi: 10.1111/j.1365-2516.2008.01948.x
  • 5. Manco-Johnson MJ, Abshire TC, Shapiro AD, Riske B et al. Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia. NEJM. 2007 Aug 9; 357(6): 535-44. doi: 10.1056/NEJMoa067659
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